"Lou Gehrig's Disease"
800.882.5764
24359 Northwestern Hwy., Suite 100
Southfield, MI  48075   Contact Us
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For 35 years, helping people with ALS (pALS), their families,
and caregivers to live life as fully as possible

MY TURN

What Am I Truely Feeling?
By Regis Kleiss
This poem expressed the poet’s feelings about being diagnosed with ALS at age 25. Read Regis Kleiss' Poem Read More Stories
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ALS Registry

The National Amyotrophic Lateral Sclerosis (ALS) Registry: It's Here! www.cdc.gov/als — (800) 232-4636

Welcome to ALS of Michigan

Whether you are a newly diagnosed pALS (person with ALS), someone who has been living with ALS for a while, a family member, health professional, or just interested in information about ALS, welcome to our website.

For the past 35 years, ALS of Michigan has worked diligently to fulfill its mission of helping people with ALS, their families and caregivers live life as fully as possible. We take our obligations to Michigan's ALS community very seriously and are dedicated to being here for our pALS and families for as long as needed.

Our site is meant to give you some basic insight into living with ALS, information about the disease, as well as, workshops, seminars, and fundraising events that we hold.

We hope that you find the information on this site useful, and if you need more assistance, please do not hesitate to call our office at 800-882-5764. You can also contact individual staff members by phone or by email. This information can be found by clicking here.


pALS Check out our pALS Video!

Taubman Institute Director Eva Feldman, M.D., Ph.D. was among four panelists invited to discuss amyotrophic lateral sclerosis (ALS) on the nationally syndicated, award-winning PBS medical program Second Opinion.

The program featured ALS patient Gary Tamoyen discussing the progression of his disease, as Dr. Feldman and other experts explained the procedures followed in diagnosing ALS and how the diseases progresses.

Need more information?

Click here for an information request form.
Click here for our Patient Resource Manual Page.

Workshops and Conferences

Living With ALS for Newly Diagnosed pALS - ALL NEW THIS YEAR!

Are you or a loved one newly diagnosed with ALS?

We are now offering some times every month when you can come by at your convenience during the day and meet with one of our professional staff members. Just let us know you are coming, and we will be here for you.

pALS

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Lou Gehrig Day Logo

8th Annual Lou Gehrig Day at Comerica Park

Saturday, June 22, 2013

Watch our 2012 American League Champion Detroit Tigers take on the Boston Red Sox!

See how you can help us score!




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We are pleased to once again team up with Hiller's Markets and The Hiller Family, our 2013 Presenting Sponsor of our 13th Annual Walk'n Roll for ALS!


Walk'n Roll logo

   

Presented By...




Click Here for Additional Information about the Walk

Click Here to Register Your Team

2013 Dates and walk locations:

  • Sunday, September 15 - Midland at Emerson Park
  • Sunday, September 22 - Lansing at Hawk Island Park
  • Sunday, September 29 - Milford at Kensington Metropark
  • Sunday, September 29 - Shelby Township at Stony Creek Metropark
  • Saturday, October 5 - Brownstown at Lake Erie Metropark

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    RESEACHERS SAY THEY HAVE FOUND THE COMMON CAUSE OF ALL TYPES OF ALS.

    We are glad to be able to start the week by sharing some exciting news. Reseachers at Northwestern University Feinberg School of Medicine published in the journal Nature, a study that for the first time identifies a common cause for all forms of ALS.

    "This opens up a whole new field for finding an effective treatment for ALS," said senior author Teepu Siddique, M.D.

    Read more here at (http://www.sciencedaily.com/releases/2011/08/110821141115.htm).

    For Our pALS and Families
    FRIENDS AND FAMILY EVENTS
    • 9th Annual Jim Rivett Memorial Charity Golf Tournament, Saturday, June 8, 2013
    • The Bob-O Golf Tournament in Memory of Rich Carter, Monday, July 15, 2013
    • ALS Dart Tournament, Saturday, June 22, 2013
    • "Strike Out ALS" Softball Fundraiser - Slugging for Steve Pitt, Saturday, July 20, 2013
    • 10th Annual Golf Outing to Benefit Carolyn E. Freeman, Saturday, August 3, 2013
    • Dave Murray's 2nd Annual Bowling Fundraiser, Sunday, October 20, 2013
    • 6th Annual Pointe Academy Dance Center Burt Meisel Holiday Performance, Sunday, December 8, 2013
    • Create Your Own Event!
      • Click here for more information on these events.
    ALS IN THE NEWS
    Ask the Professional - Voice Banking
    Q: I heard something about voice banking and I want to save my voice on the computer in case I lose my speech. How do I go about doing this?
    A: This is a question I get frequently. First, let’s differentiate between voice banking and message banking. Based on a model developed by John Costello, MA CCC-SLP at Children’s Hospital Boston (CHB), these are two separate ideas.
    Read more »
    ESPECIALLY FOR VETERANS WITH ALS
    We are pleased to announce these new rules from the Department of Veterans Affairs. All veterans with ALS who have served at least 90 days or more of continuous service now have presumptive eligibility.
    Read more »
    All ALS of Michigan event pictures can now be found on Flickr at www.flickr.com/photos/alsofmichigan
    Order your Hiller's Scrip Card »

    Donate with Confidence

    Are you concerned about how your generous contributions will be used?  Of course you are!

    100% of your contributions stay right here in Michigan helping Michigan pALS and their families.

    Click here now for secure Online Giving: Click here to Donate Now!
    		 Our services to families, caregivers and patients with ALS (pALS) include support groups, respite care, augmentative and alternative communication, seminars and workshops, loan closet of durable medical equipment, home visits, patient and public information, and much more! -- We also support research into the cause, cure and treatment of ALS.
    ALS of Michigan is not associated with
    ALSA - The ALS Association
    or with the ALS Association - Michigan Chapter
    Member of Community Health Charities
    Goodsearch logo
    Blue Cross Blue Shield Walking Works For free or low-cost health care coverage for children under the age of 19 - or pregnant women of any age - call the MI Child and Healthy Kids hotline at 1-888-988-6300 or go to https://healthcare4mi.com/michild-web/.